Hope For Marian Foundation Fighting Niemann Pick Type C
Por um escritor misterioso
Descrição
NPC is devastating. It is always fatal, striking any age from infant to adults. There is no cure and access to limited therapies are restrictive. Hope For Marian Foundation is working to change this. We give a voice to patients around the world advocating universal access for life sustaining medicines for this generation of children and adults fighting Niemann Pick Type C.
A terrible disease, children at risk, and a promising treatment
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